Tuesday, October 13, 2015

Spookshow Baby

     Apparently, we're living in a horror movie now. I was sitting at work this morning, minding my own business and cursing the annoyance that is insurance adjusters, when my husband texted me that he'd just left the eye doctor's and he had some news for me. The good doctor had informed him that if his cornea does not make "significant improvement" in the next six days, he's going to have to move on to the next option for treatment - SEWING PART OF MY HUSBAND'S EYE CLOSED. I wish I were making this up.

     Ever since my husband underwent emergency surgery to repair his detached retina, that eye has been abnormally red and inflamed. Finally, after his final follow up with the surgeon, who knew that the cornea should have looked a lot better than it did at that point, he was referred to a cornea specialist. (Not gonna lie, I didn't know such a thing existed.) The new doctor did an exam and concluded that the cornea was abraded and inflamed because of all the poking and prodding that it had recently undergone, and frankly, it was just fed up.

     Wikipedia tells me that the cornea is made up of different layers of connective tissue, though I didn't see that red-flag word - fibrillin; I only read that there's collagen involved. So, how much of this connective tissue is affected by the Marfan's, I don't know, since collagen production isn't a problem with Marfan's. This most recent circus is, however, a secondary result of the underlying syndrome, inasmuch as the previous monkeying-about with my husband's eyeball was a direct result of Marfan-related issues. His lens dislocated over a decade ago and a new one had to be implanted, the suture from that surgery gave out in 2011 and had to be repaired in an emergency surgery, and his retina detached a few months ago, which resulted in yet another emergency surgery.

     Combined with years of contact-wearing and the subsequent daily eye-poking, all those procedures really did a number on his eyeball, which wasn't in the best shape to begin with. Honestly, I think it would have been difficult for a healthy person's eye to withstand so much, but in his case? I suppose it was really just a matter of time before hit a wall yet again.

     He's been wearing a protective contact for the past few weeks, and that, along with the special preservative-free eye drops he's  been using daily, have improved the situation to some degree. He confirmed last night that it no longer hurts, and he no longer looks like a sleep-deprived maniac. It's just not enough, though, and when he went to the specialist yesterday, he was given the potential next step of removing the contact and sewing the outside third of his eye closed for the next six to eight weeks to allow the corneal surface a chance to really heal itself.

     Seriously? Are we seriously moving to Frankenstein-esque treatment methods now?

     Sorry. I know I should give this a chance, especially since we're not yet 100% certain it's going to happen. The truth, though, is that my husband and I both know that his body is not going to miraculously speed up the healing process that has so far moved at a snail's pace. Why would it? How could it?

     I'm not even sure how sewing the eye closed would be better for him than the protective contact, and when my husband posed that very same question to the doctor, he was told, "I can't explain how it works, but I know it does." Now, what the doctor was likely trying to convey was, he can't really explain in layman's terms how or why this is a thing, but he, the one who's had years of experience and medical school training, knows what's going on. And honestly, we're both fine with that, because despite everything, we both still have more faith in medical science than anything else.



Jennifer said...

My father lost both his lenses over a period of time. In fact, the second one dropping is what ultimately led to his Marfan's diagnosis almost 30 years ago! He had custom fitted contacts that were some crazy geometry ... I think they were made in Germany, if I remember correctly.

Anyway. I just wanted to say I still check in with you guys and I hope you find strength!

India Pearson said...

Sigh. Did not realize the comfort that could come from reading about your struggle. That sounds bad. My husband is down to one eyeball at age 36 and none of my friends really get it, sympathetic as they may be. Thank you.

Becky O. said...

Ugh,so sorry to read all of this. So far, my eye doctor is just watching for glaucoma, and I have pigment dispersion. I honestly don't know my feelings on Marfan's Syndrome anymore. I had a valve sparing procedure (David's Procedure) done 3 years ago to remove an aneurysm from my aortic root. I now have a 1 year old son, who has just been confirmed of inheriting Marfan's from me. SO lovely. Take care!